tag:blogger.com,1999:blog-5153760761875909811.comments2022-11-18T05:41:03.593-08:00Jim's Bicuspid Heart Valve DiaryJim Kelly-Evanshttp://www.blogger.com/profile/14920851683859490856noreply@blogger.comBlogger41125tag:blogger.com,1999:blog-5153760761875909811.post-63724506659100928172015-02-03T07:05:59.265-08:002015-02-03T07:05:59.265-08:00Starv thyself, Jimbo. I tell me that too. I leave ...Starv thyself, Jimbo. I tell me that too. I leave of the last e for thinness.Michael Andrehttps://www.blogger.com/profile/09041946940083486881noreply@blogger.comtag:blogger.com,1999:blog-5153760761875909811.post-70108814029347264332012-10-15T10:23:57.541-07:002012-10-15T10:23:57.541-07:00How about go to the E.R., thinking your getting an...How about go to the E.R., thinking your getting anti-biotics, thinking in your mind the whole time you have a sinus infection or something no biggie like that. Worse your thinking is being scolded 4 being a smoker, & yada. Yada... This time you finally get to the E.R. is due 2 you finally can't sleep @ night, due to everytime you lay down you start to cough so hard and can't get it to stop, AS IN LITERALLY NO SLEEP NO REST, NO NOTHING BUT ALOT OF COUGHING & COUGHING. at, the E.R. you realize as the E.R. Dr. isn't giving ou the norm 4 scripts on a sinus infection or close to any other of the 6-8 times in your adult life you saw a Dr.. NO YOU HAVE TO GO TO THIS FLOOR, THEN 2 THIS DR. 2MORROW, HE OPENS THE DOOR & OINTS KITTY CORNER WHERE YOU GO NEXT ......... SO, BEGINS YOUR LIFE NOW AS A HEART PT. You can't work, all of sudden everything si so final, so unbelievably flipping like not your life you keep waking up & saying, Cause YOUR A 46 YR OLLD UNION MAN WHO HAS CHF. WHAT?????? I sympathize w/ you there on your ordeal, what I wrote is fact of my old man & this is our life now. He's lived past initial of 5 yr but the end is near & my life just started when I met him almost 4 & half yrs ago. But, ironicaly I noticed in first part of your storyl, you have always grown up knowing you had a minor heart murmur. Well, I found out I had a heart murmur from my otrho specialist, 1st time I saw him & he was doing a post op. Shocked me & really don't think 2 much of it - Mother had cancer & really life is hard enough & so unbelievably screwed in ways you couldnt ever think there was life that I don't even think to much of how close to the end my old man is - it just is what it is ......... You take care & remember "DREAM AS IF YOU'LL LIVE FOREVER & LIVE AS IF YOU'LL DIE TOMORROW".DynaBabyhttps://www.blogger.com/profile/09237712255746545782noreply@blogger.comtag:blogger.com,1999:blog-5153760761875909811.post-57842245460132425272011-05-07T23:52:08.409-07:002011-05-07T23:52:08.409-07:00That is quite bugging if you have to wait for the ...That is quite bugging if you have to wait for the situation to become worse for the treatment to start.But what else could you do...may be take some other opinions as well to be on the safer side.Dr. Ordon plastic surgeonhttp://www.drordonsurgicalgroup.comnoreply@blogger.comtag:blogger.com,1999:blog-5153760761875909811.post-58663987898016333572010-11-18T19:37:40.984-08:002010-11-18T19:37:40.984-08:00I think discussion really helps when you are in a ...I think discussion really helps when you are in a situation which is different from usual and you want to know whether what is happening with you is normal and natural.There are discussion groups which give support other than just exchange of ideas.revision rhinoplasty beverly hillshttp://www.drcalvert.com/procedures/?procedure=401noreply@blogger.comtag:blogger.com,1999:blog-5153760761875909811.post-88338647643598820902010-10-27T13:26:40.709-07:002010-10-27T13:26:40.709-07:00Many patients with bicuspid aortic disease and aor...Many patients with bicuspid aortic disease and aortic aneurysms can be treated like patients who do not have a bicuspid aortic valve with respect to the size of the ascending aorta. There is little medical evidence to suggest an earlier interventions in patients with bicuspid aortic valve and aneurysm. You should look out for a paper in the Annals of Thoracic Surgery in the upcoming months from the Mount Sinai Aortic Program which addresses this group of patients. Glod Bless.Anonymoushttp://www,aortarepair.comnoreply@blogger.comtag:blogger.com,1999:blog-5153760761875909811.post-90995469895997124102010-09-16T14:15:34.555-07:002010-09-16T14:15:34.555-07:00Jim,
Your flowers are gorgeous !!
My name is Mar...Jim,<br /><br />Your flowers are gorgeous !!<br /><br />My name is Mary and I too have a thoracic ascending aortic aneurysm and bicuspid valve. The aneurysm is now over 5.0 cm (on a small-framed woman) and so with my bicuspid valve I am scheduled for surgery at Cleveland Clinic on October 1, 2010 with Dr. Bruce Lytle. I will be in/out of the hospital for testing 9/28/10 until surgery on 10/1/10. I am 66 years of age and extremely healthy. I have never had a symptom from the aneurysm…….just found it incidentally on CT scan in 2006 when I had a bad sinus infection/cold. I currently walk about 12 miles per week and swim 2-3 days per week, trying to get in shape for the surgery/recovery. Also, since November 2009, I have lost thirty pounds in preparation for the surgery.<br /><br />I have always been against invasive procedures (have never even consented to a colonoscopy) but here I am walking into the most invasive surgery possible with DHCA (Deep Hypothermic Circulatory Arrest) surgery with flat-line brain scan, freezing and everything. I actually still can't believe that I have consented to it (like I have consented to the surgery for someone else) but……I suppose the alternative really is worse…….So HERE I GO! Will post more later from Cleveland Clinic when we get there next week and after surgery. Hope you are feeling well.<br /><br />MaryAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5153760761875909811.post-47452494514475173712010-08-26T19:02:19.803-07:002010-08-26T19:02:19.803-07:00Great Blog Jim. I had surgery last year. I'm...Great Blog Jim. I had surgery last year. I'm 38 years old. I was in perfect shape except for the anuerysm and I tried everything possible to avoid having to go under the knife. I pushed the envelope so much that I gambled with death in hindsight. Like you I was a reasearch-a-holic in regard to the size of the aneurysm and whether or not I should get surgery. In the end it was obvious to everyone, and finally me, that I would be an idiot to not get the surgery. Final measurements during surgery were 6.5cm. Keep up the good work on you blog. People will benefit from your experience. I agree that you could probably wait a while, but ultimately only you and your surgeon can make that decision.BenjaminJChttp://www.heartosaurus.comnoreply@blogger.comtag:blogger.com,1999:blog-5153760761875909811.post-28910006876120112832010-08-26T17:48:12.683-07:002010-08-26T17:48:12.683-07:00Great info. Jim! I am 38 years old. I was in pefe...Great info. Jim! I am 38 years old. I was in pefect health last year when I had surgery. I tried everything to avoid it, and came very close to gambling with death because I was so against the surgery. In the end, like I said I had it, and I am doing great. I was a researchahilic like you.BenjaminJChttp://www.heartosaurus.comnoreply@blogger.comtag:blogger.com,1999:blog-5153760761875909811.post-70621844542415373412010-04-17T05:43:09.100-07:002010-04-17T05:43:09.100-07:00Thanks for the best wishes, Flea. Jonna, yes, I ha...Thanks for the best wishes, Flea. Jonna, yes, I have visited the Bicuspid Foundation web site. I've been learning about the relationship between BAV and connective tissue disorders. This is on reason why I actually went to see a renowned surgeon at the University of Pennsylvania. So I am seeing a cardiologist he recommended and we're on top of the situation I believe. Thanks for your comments.<br /><br />JimJim Kelly-Evanshttps://www.blogger.com/profile/14920851683859490856noreply@blogger.comtag:blogger.com,1999:blog-5153760761875909811.post-35246617727384425012010-04-15T11:46:18.366-07:002010-04-15T11:46:18.366-07:00Jim,
I also have BAVD and was diagnosed in Septem...Jim,<br /><br />I also have BAVD and was diagnosed in September 2009 with pulmonary venous hypertension. <br /><br />Most cardilogists I've met don't understand the critical nature of BAVD. <br /><br />Your aorta size caught my attention. In someone with an ordinary aortic valve, your numbers would be fine. 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I wish...HI Jim, sorry to read about your condition. I wish you all the best.Fleahttps://www.blogger.com/profile/14277854645434859624noreply@blogger.comtag:blogger.com,1999:blog-5153760761875909811.post-61174807634479061612010-02-08T14:44:58.113-08:002010-02-08T14:44:58.113-08:00Hi!
I came across your blog today. I hope all is w...Hi!<br />I came across your blog today. I hope all is well with you Jim. I have a 2 year old daughter, Cassidy, who was born with Tetralogy of Fallot w/ PA & MAPCA’s. <br />I think blogs are a great way to get the word about about CHD’s and I commend you for what you’re doing.<br />My wife and I are also on a mission to spread the word about CHD’s. We just started a jewelry company called Lucky 10. All of our products are handmade and pertain to Heart Defects and the Heart Community in general.<br />Please check out our site when you get a moment. If you could help us get the word out about our new business we would be very grateful. It’s a project that’s very dear to our hearts.<br />www.lucky10.etsy.com<br />Thanks so much and we look forward to reading more on your blog!<br />Thanks,<br />Vito Lisa<br /><br />P.S. If you want to keep up with Cassidy’s journey here is her Carepage info: <br />www.carepages.com , Page name: cassidylisaLucky10https://www.blogger.com/profile/14489623044674596143noreply@blogger.comtag:blogger.com,1999:blog-5153760761875909811.post-54349685185289598962010-01-15T18:32:24.580-08:002010-01-15T18:32:24.580-08:00Just came across your blog today and have been rea...Just came across your blog today and have been reading it. . . you provide some interesting info about your experiences with BAV.<br /><br />I'm 54, and in early December I had an echocardiogram that revealed I had a bicuspid aortic valve---never knew I had it before then and didn't know what it was. I was also told that I had a dilated aorta. After following up with MRIs of the chest and neck, the cardiologist has recommended heart surgery (Bentall procedure). . .a sobering thought to say the least. Right now, I can't commit myself to having it done. Good to read about your experiences and how you're staying active without surgery.iffnwenhttps://www.blogger.com/profile/15245258346960883559noreply@blogger.comtag:blogger.com,1999:blog-5153760761875909811.post-77801579157379424812009-07-17T08:01:37.781-07:002009-07-17T08:01:37.781-07:00I love the pic! We were in Paris over the 4th of ...I love the pic! We were in Paris over the 4th of July visiting family, and went on a cruise out of Spain that went to Italy, Greece, Turkey, Egypt, and Malta back in January.<br /><br />I hope you have an amazing trip! Which cruise line are you taking? We went on Norwegian.<br /><br />Happy you're feeling good.Rachelhttps://www.blogger.com/profile/14502957359499072151noreply@blogger.comtag:blogger.com,1999:blog-5153760761875909811.post-11466043521124416522009-04-21T22:45:00.000-07:002009-04-21T22:45:00.000-07:00Aortic valve replacement is a type of heart surger...Aortic valve replacement is a type of heart surgery performed to replace an aortic valve that does not function correctly, due to narrowing (stenosis) or leakage. Know more consult Dr. Allan Stuart at Valve Replacement New York.Susan Diazhttps://www.blogger.com/profile/07613947054791248028noreply@blogger.comtag:blogger.com,1999:blog-5153760761875909811.post-72237098718048235912009-03-30T13:49:00.000-07:002009-03-30T13:49:00.000-07:00Jim, thanks for the comment! Interesting blog, it...Jim, thanks for the comment! Interesting blog, it's always good to read about others going through a similar thing. I have got BAV so we're in a similar situation. :) Hope everything goes well for you and I'll keep an eye out on your blog!Ajayhttps://www.blogger.com/profile/12901963666683446364noreply@blogger.comtag:blogger.com,1999:blog-5153760761875909811.post-29247031096675620602009-03-27T10:50:00.000-07:002009-03-27T10:50:00.000-07:00Good Luck Jim. I am rooting for you!Good Luck Jim. I am rooting for you!WPBNYC and Anything Elsehttps://www.blogger.com/profile/06825156796761287801noreply@blogger.comtag:blogger.com,1999:blog-5153760761875909811.post-23140144835701452792009-03-16T20:41:00.000-07:002009-03-16T20:41:00.000-07:00Good luck meeting with your new cardiologist. I h...Good luck meeting with your new cardiologist. I have a friend up in Canada that just received a new pulmonary valve via cath. Hopefully they start offering this option down in the US soon!Rachelhttps://www.blogger.com/profile/14502957359499072151noreply@blogger.com